Archive | September 2011

A few Hand Crafted Cards

These are two images of an embroidered card I did in blue tones. One image is meantto be a more close up shot of the word ” Hi”  and flower to focus on the embroidery.

Creating hand made cardsis one of my passions and I am looking forward to creating my gallery of my work here justso I can watch my progress from time to time.

 It was easy to just write my word “Hi”, draw my flower,  then I pre-punched the holes around my word that then made embroidering a piece of cake. Even for this lady who does not sew, not on cloth anyway. Been known to  buy a sewing machine just for paper though.

Thanks for looking!

 

 

WordPress Notification Emails Down

Hello friend’s,

Just in case I  seem to be ignoring or neglecting to respond to a new post notification or an email to confirm a new subscription, etc.. please know it’s not me.  I have been unable to find any content to my emails from wordpress notifications forr about a week now.  It is not just me I learned tonight and I have sent a second trouble note to the staff. My hope and desire is that it is being worked on as I write this.

Thanks for not holding this against me.  You have to wonder how ever a writer will build up readership this way. Right?

Dr Oz & the word “Disease” did you miss it?

The Dr Oz  show? ….. ahem.. …not one I watch often, only because I don’t watch a lot of TV and rarely ever do I watch day time TV.  So much so had a friend not phoned 5 minutes before  the Dr Oz’s show was to air I would have missed maybe one of the most important pieces of TV journalism and advocacy rolled into one program  I’d seen in a long time.

Did you see it?  Dr Oz’s show this week on chronic pain?  September is Chronic Pain Awareness Month and I must say Dr Oz rose to the occasion.  I for one was pleasantly surprised.  Albeit only less than 30 minutes is hardly enough time to do this topic justice  surprisingly so there was a lot of credible and validating information dispersed in that short time.

One of the most important things as woman who lives daily in pain I heard Dr Oz say was that doctors are just not getting it. Have not been getting it.  He even admitted he was likely to piss off a lot of his colleagues’.  But he also challenges them to take the time to educate themselves.  Would that not be a wonderful time to be alive in our grand USA?  When and where doctors were actually educated on chronic pain as a disease itself in medical school?  Now there is a crazy and brazen idea, yes?   Can you imagine?

I liked what I saw in the first 30 minutes of his show. I didn’t stay around for the rest not only because it no longer seemed focused on CP but because I was not feeling well.   I ironically was hurting from chronic pain.  

If you missed Dr Oz’s show on Living with Chronic Pain, and how the AMA is now ready to term chronic pain as a disease read below.  ( I know…It’s about time don’t you think?)

Please see the links below I’ve tucked in here.

For Dr Oz show below:      

 http://action.painfoundation.org/site/R?i=mR5Q5vBdVvY263N1oAdGVA
The above link is from the website American Pain Foundation   Homepage:           http://www.ameicanpainfoundation.org.org

Promoting is a Sin.. Unless it’s for your #1 Nascar Driver~And for Passion~

Feeling a bit silly doing this. Could I be a Nascar Groupie at age 56? Would not be the first nor the last. However I am willing to try and promote Kevin Harvick’s name, business and anything else I can to keep Nascar racing a top rated sport country wide. I am hoping to bring more women, especially from the Pacific Northwest into having a passion for this sport. It’s so much more than about just turning left.  Passions are the breath of continued happiness in life. If you don’t have even just one than you are taking your years off your life.

Passions.  As I said the breath of life. Without any at all your brain stops growing. A brain that stops growing is one left susceptible to dementia earlier than would be if there had been even just one passion. Passion costs you little. It’s about something that seems effotless to love, Something that feeds your soul as well as your creative energy. Having something in your life that you are passionate about relies on no one but you and your passion. In fact the costs that may be involved are mostly emotional ones and if you find this is how it is for you then know you’re on the right track. You are ab;e to love your passion without feeling beholding to it. Our passions are not about ” Have To’s” but instead about “Want To’s” This should not feel like work but more like an escape from everyday matters.

I have a few passions. I am passionate about the one sport I adore, Nascar Racing x 3 series. Sprint Cup, Nationwide &   Truck. I am passionate about my papaer arts, creating, memory books, altered arts such as books, collages, 3D Art and my latest passion; creating paper flowers, especially roses.

KevinHarvick Kevin Harvick RT @KHI_ESHOP New ladies layered t-shirts available in both Kevin Harvick No. 29 http://t.co/Zs961Wj & Happy Harvick http://t.co/i8xhrGQ

Possible Long Term Opioid Abnormality Study

Post from MEDPEDIA    A valuable resource.

“Study Finds Patients On Long~ Term Opioids Likely Have Hormone Abnormalities.”

http://www.medpedia.com/communities/233-Chronic-Pain/discussions/1381

Joseph V Pergolizzi MD         Sep 28, 2011 at 12:04pm Medscape

(9/28, Melville) reports findings presented at the American Academy of Pain Management (AAPM) 22nd Annual Clinical Meeting in which “18 patients, including 10 men and 8 women, with an age range of 40 to 75 years, who had been maintained on high-dose opioids (equivalent to 300 mg morphine for 20 or more years)” were profiled. Researchers found “widely varied hormone abnormalities, and only 1 patient demonstrated normal levels on all 6 assays testing for cortisol, pregnenolone, testosterone, estrogen, corticotrophin, and follicle stimulation hormone (FSH).” Low FSH and low testosterone were common. In addition, for some patients, “opioids were not controlling the pituitary and adrenal gland as well they should have” and resulted in overactivity. Lead researcher Forest Tennant, MD said that for patients with intractable pain, “pituitary-adrenal-gonadal axis screening is critical, and patients should be clinically treated for deficient or excessive hormone levels.”

My comments below:   (I believe it’s imperative that we lay-people give as much input as possible to the medical community. I have been dealing with this problem far too long and am only now finding any credible information concerning this issue.)

Once again I feel the need to preface this comment with I am “just” a layperson who lives with intractable pain. Have for over 27 yrs now. Out of all these years I have been treated successfully for intractable pain with opiate pain medications for a about 25 of those years. Thank you Dr. Pergolizzie for bringing this report to a discussion forum. I believe from personal experience it has merit. Can I lend my personal experience to this discussion? I have been fighting the symptom of what I refer to as overheating for 27 years. If I had my way I would keep the ambient temperature close to 65 degrees everywhere I am because my body no longer seems able to cool itself. I often refer to it as if it feels like my internal thermostat is broken. Because at the age of 35 I had a complete hysterectomy it was naturally assumed that my problem was related to the surgical induced menopause and I was put on Hormone Replace Therapy. (HRT) I also am fighting two foreign materials in my body from implants in my jaws that were later recalled by the FDA but only after my implants had unknowingly fragmented completely. I’m convinced that this also plays a role. A series of HRT’s were prescribed over those first 5-7 years after the surgery with no benefit received for the overheating problems. I can tell the difference between a hot flash and my body not being able to cool itself off. This is not hot flashes I am dealing with. FYI ; the HRT’s did nothing to relieve my symptoms and with my internists guidance I stopped taking them because I felt the risks outweighed any benefit I was receiving. This report only validates that what is going on with my body and it is not from my hysterectomy. At least not alone. I have been prescribed a very minimal dosage of Clonidine (o.1mg) for my problem with “overheating” by my internist. Not for Hyper Tension but for the symptom of not being able to keep my body at a regular & comfortable temperature. I also take a Soy supplement which with the combination of the Clonidine has made a vast improvement. I’m not 100% comfortable but if having to do without these two medicines I would be very embarrassingly uncomfortable. From a layperson’s point knowing that this kind of symptom is being recognized and researched gives me hope.

Understanding an Invisable Illness.

  Fibromyalgia is often referred to as an invisable illness because others cannot see how ill a person inflicted with Fibromyalgia  (FMS) can be. The symptoms though plenty are not ones that are visable like a broken leg is. They are what is called subjective.  Understanding and becoming educated about this strange illness is the one thing you could do for someone you love who has been diagnosed with FMS.

Fibromyalgia is a complex disease in which both genetics and environmental factors play a role. For a better understanding, here are some basic facts about Fibromyalgia and its symptoms:

  • Fibromyalgia afflicts 8 to 12 million people in this country alone. It does not discriminate by gender or age, but predominately affects women between the ages of 35 and 54. It has been found to be genetic, affecting children and the elderly, both male and female alike.
  • Fibromyalgia is a complex disease involving multi-system disturbances and abnormalities. Because of this complexity, these conditions have been poorly treated by the current 8 to 15 minute visits that address only a portion of the wide spectrum of underlying dysfunctions.
  • Diagnosis is difficult. Currently there is no medical test that will clearly diagnose Fibromyalgia. Diagnosis is presently based on patient history and tender point sensitivity. “Tender Points” refer to 18 points on the body in which extreme sensitivity may occur in at least 11. Tender point sensitivity, as well as a history of widespread chronic body pain for at least 3 months, provides the most definitive diagnosis at this time. Other symptoms relating to a diagnosis are listed below.
  • The underlying cause of Fibromyalgia is unknown. Research is ongoing, but there is agreement that Fibromyalgia patients have an enhanced pain sensitivity and response originating from the central nervous system. Traumatic illness or injury may trigger the disease. Additional research is continuing to determine other factors that may lead to the development of Fibromyalgia including: genetics, environment, autoimmune dysfunction, nutritional deficiencies and connective tissue disease.
  • Frequency, degree and location of pain vary from day to day. Any given day a Fibromyalgia patient’s level of discomfort may range from mild muscle stiffness to extreme, radiating pain so severe they feel completely debilitated and unable to carry out simple activities.
  • Treatment is focused on managing the symptoms. The severity of Fibromyalgia varies from person to person and day to day, therefore, the treatment plan should be individualized. The patient must be focused, determined and dedicated to regain control and manage the symptoms.
  • A well-rounded management program may include: nutritional counseling, conditioning, exercise programs and lifestyle changes. Alternative therapies such as acupressure and massage, stress management and relaxation techniques may be considered.
  • Support from family and friends are critical. Understanding Fibromyalgia and having the emotional support of those closest to you can make a tremendous difference in your outcome.

Other common symptoms include:

  • Flu-like pain that can be severe and constant
  • A constant feeling of exhaustion
  • Specific tender points that hurt
  • Overall body aches
  • Depression
  • Muscle stiffness and pain
  • Insomnia or other sleep disorders
  • TMJ Disease (Temporal Manibular Joint Disease)
  • Extreme fatigue
  • Depression not caused by a trauma or event, but by chronic discomfort
  • Cognitive problems, often called “brain fog”
  • Reoccurring headaches
  • Multiple reoccurring infections
  • Irritable bowel syndrome

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